SIGNS. Signs can be subtle and often missed, however today, from the beginning of the day to the end, there were signs coming at me thick and fast - all bright and positive and things I obviously needed. They've lifted a black cloud off my heart and have given me an amazing emotional and spiritually charged boost!
Too many people to thank individually or to explain their individual impact, however if you had contact with me TODAY - you were one of those people! Thank you and God Bless.
Tuesday, May 31, 2011
Sunday, May 29, 2011
Happy days
First day since last Monday that I can actually say I feel pain free. I have got everything sorted and am now on the up and up. Spent the day on the Central Coast with friends, and glad to be back to my normal self. Feeling very confident that last week will be a one-off experience, and it will be relatively smooth sailing from here on in (all things considered!)
Friday, May 27, 2011
Home from hospital
Not feeling very well Monday afternoon with pains in stomach, so put up with it until nearly midnight Tuesday night when GT and I treked to RNS Emergency - a bloody aweful experience, however I was admitt to Level 12 midday Wednesday and saw the Heam Dream Team. Had a CT scan, that didn't shine any light on anything particularly abnormal. Home now, still have some stomach pain but sufferable, and the 2nd week of chemo is done.
Just resting now.
Just resting now.
Friday, May 20, 2011
Update
Saw Dr Will this morning, he's pleased with progress so far. Just keep on keeping on, CT scan planned after 2nd cycle (8 weeks) to see if things are regressing.
I'm feeling very positive.
Thursday, May 19, 2011
Post-juice bar resting today
Well the No-Frills juice bar at RNSH was a bit of a shock to the system, compared to the Versace SAN juice bar.
Arrived at 10, waited 2 hours for the drugs, they took about an hour, then waited another hour to get out of there. Got handed a couple of bottles of drugs and wasn't told what to do with them - so that caused a bit of stress when I got home - so I winged it. I was exhausted and not feeling well so off to bed I went for the afternoon. Got up for a tea and then back to bed.
Feeling OK to day - just resting and taking it easy. Gotta get out to do a blood test at some time today and then will be seeing Dr Will tomorrow to touch base. Some questions for him, but I generally know what I have to do - I've done it all before _ its slowly coming back to me.
Arrived at 10, waited 2 hours for the drugs, they took about an hour, then waited another hour to get out of there. Got handed a couple of bottles of drugs and wasn't told what to do with them - so that caused a bit of stress when I got home - so I winged it. I was exhausted and not feeling well so off to bed I went for the afternoon. Got up for a tea and then back to bed.
Feeling OK to day - just resting and taking it easy. Gotta get out to do a blood test at some time today and then will be seeing Dr Will tomorrow to touch base. Some questions for him, but I generally know what I have to do - I've done it all before _ its slowly coming back to me.
Wednesday, May 18, 2011
Who would have thought
Well I'm off again for another visit to the juice bar, and its taken a little time to come to terms with the bad news of having to battle a fresh bunch of cancer in the lungs.
While this chemo is not expected to cure me, its expected to shrink what's there so I can prepare for an allogenic stem cell transplant.
Dr Will has given this option about a 30 to 40 percent chance of working.
Gotta be in it to win it I say, so here we go again.
Tuesday, May 17, 2011
Beautiful Tuesday
Spending my last day feeling well, chemo starts tomorrow.
Every wednesday for 3 weeks, then one week off. The Dr is hoping to see some change in the cancer in the lungs, praying that they shrink.
It will be interesting to see what the juice bar is like at RNS.
Every wednesday for 3 weeks, then one week off. The Dr is hoping to see some change in the cancer in the lungs, praying that they shrink.
It will be interesting to see what the juice bar is like at RNS.
Friday, May 13, 2011
More chemo
Starts next week - 1 day a week for 3 weeks then one week off. Could be 1, 2 or 3 cycles, depending on how things go. All going well I'll be an outpatient.
Then stem cell transplant with Babette's immune system after that.
Monday, May 9, 2011
Meeting with Dr Will
Not quite what we were expecting, the spots on my lungs is new lymphoma and the best option for me now is to do more chemotherapy. Dr Will is keen to start next week. After that is probably a stem cell transplant with my sister's stem cells.
Everything however will be fluid, as there will be a lot of 'corners' in this journey, and you never know what's around them til you get there.
Just gotta keep punching away, and praying.
Friday, May 6, 2011
Mothers day weekend
PET scan on Wednesday went as expected. The report suggests some good things and some not so good things, however I will need Dr Will to decipher the report overlapped with the lung biopsy which will give a much clearer picture as to where things are at. Leaving me with somewhat 'distracted' thoughts - wondering if its good or bad ,,,,,
Happy mothers day weekend to all! My weekend started today with a mothers day breakfast and liturgy with Jessica at her school and was followed closely with a lovely lunch with my dear friends from uni days of old.
Got a full weekend to keep me occupied until Monday when I see Dr Will at 11am to discusss the results of the PET scan and lung biopsy. Fingers crossed!
Happy mothers day weekend to all! My weekend started today with a mothers day breakfast and liturgy with Jessica at her school and was followed closely with a lovely lunch with my dear friends from uni days of old.
Got a full weekend to keep me occupied until Monday when I see Dr Will at 11am to discusss the results of the PET scan and lung biopsy. Fingers crossed!
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