So I dodged the whooping cough, and we travelled up to the central coast to see the family and stay a week at the Big 4 holiday park at Umina. We ended up coming home on Wednesday because the miscellaneous pain in my upper abdo was driving me batty. Saw Dr Will on thursday and had another CT scan, got some pain relief drugs for the interium.
Relaxing at home, feeling better.
Friday, September 30, 2011
Friday, September 23, 2011
Bugger off whooping cough!
Can't believe it, gearing up for a little R&R with family on the central coast, and Jessica has tested positive to whooping cough. Apparently there is an epidemic! The whole family are on antibiotics and staying away from civilisation for 5 days.
Saw Dr Will yesterday - he suggested a couple of drug options to attempt to retard any growth of the cancer while we wait for the graft vs host disease. One drug is especially new, and I have been referred on to a nuclear medicine Dr to discuss it. Its called Zevalin.
Enjoying a quiet day at home, weather is fantastic! Kids are behaving ,,,,,
Saw Dr Will yesterday - he suggested a couple of drug options to attempt to retard any growth of the cancer while we wait for the graft vs host disease. One drug is especially new, and I have been referred on to a nuclear medicine Dr to discuss it. Its called Zevalin.
Enjoying a quiet day at home, weather is fantastic! Kids are behaving ,,,,,
Sunday, September 18, 2011
All OK
Dreams about sister's hunt for a single man have stopped.
Dealing with an annoying miscellaneous stomach pain, that comes and goes - has been interferring with sleep in the last few days. I think it has something to do with when I take medication ,,,, so I'm trialing another combo today.
GT and kids have gone to have lunch across the city with his 90yr+ grandparents and his cousin from Bathurst. I have opted for a quiet day at home, and am enjoying the glorious sunshine.
Dealing with an annoying miscellaneous stomach pain, that comes and goes - has been interferring with sleep in the last few days. I think it has something to do with when I take medication ,,,, so I'm trialing another combo today.
GT and kids have gone to have lunch across the city with his 90yr+ grandparents and his cousin from Bathurst. I have opted for a quiet day at home, and am enjoying the glorious sunshine.
Wednesday, September 14, 2011
sleeping, sleeping and more sleeping
It's hard to predict from day to day how I'm going to feel. Today has been the first day since the transplant that I have felt I've had all my faculties about me, and I feel I'm functioning like a "well" person. I'm sitting outside with the fresh air and ipod; catching up on all the "home administration" and phone calls that are longest overdue (if you didn't get a call ,,,,, just think there are people who have been ignored longer than you!)
Brookie and GT have got a little cold that I'm trying to dodge. I've opened all the windows in the house and am washing all the things Brookie has wiped her runny nose on in the last week or so.
I'm at DAY 34. No GVHD (graft vs host disease) showing itself as yet. I'm travelling to RNSH Mondays and Thursdays to catch up with Drs and check in. I'm getting pretty bored turning up twice a week saying I'm doing well, no rash etc etc. I think tomorrow they'll start playing with medication doses to bring it. There will be no radiotherapy on my chest at this point, its apparently too difficult. So we sit and wait ,,,,,, however something interesting has started happening ,,,,,,,,,
Since my sister's stem cells have engrafted, I have been having dreams about her - almost every night now, completely different dreams, with the same general thread - we are on holidays together, and trying to find her a gorgeous single man. Thankfully, Babette doesn't read my blog cause she already has a boyfriend - but how weird that these dreams are occuring ,,,,,,, she has been in every dream I remember since engraftment. Spooky eh? And just for the record, I'm not doing any "test" driving.
The whole connection to my sister is weird considering I now have "her blood" pumping through my veins. She's a scorpio (starsign) - so I can imagine when the GVHD kicks in - its gonna be one aggressive little mother - with her and I combined, cancer will have no hope! Bring it! (,,,,yes sadly I have also been watching too much of the bloody X factor. I mostly sit there and go on about how (last year) that nut job kept getting thru (to my disgust) and finally won! Where is he now I ask you? I'm surprised X factor has any cred at all ,,,, but I'm still addicted this year! )
Brookie and GT have got a little cold that I'm trying to dodge. I've opened all the windows in the house and am washing all the things Brookie has wiped her runny nose on in the last week or so.
I'm at DAY 34. No GVHD (graft vs host disease) showing itself as yet. I'm travelling to RNSH Mondays and Thursdays to catch up with Drs and check in. I'm getting pretty bored turning up twice a week saying I'm doing well, no rash etc etc. I think tomorrow they'll start playing with medication doses to bring it. There will be no radiotherapy on my chest at this point, its apparently too difficult. So we sit and wait ,,,,,, however something interesting has started happening ,,,,,,,,,
Since my sister's stem cells have engrafted, I have been having dreams about her - almost every night now, completely different dreams, with the same general thread - we are on holidays together, and trying to find her a gorgeous single man. Thankfully, Babette doesn't read my blog cause she already has a boyfriend - but how weird that these dreams are occuring ,,,,,,, she has been in every dream I remember since engraftment. Spooky eh? And just for the record, I'm not doing any "test" driving.
The whole connection to my sister is weird considering I now have "her blood" pumping through my veins. She's a scorpio (starsign) - so I can imagine when the GVHD kicks in - its gonna be one aggressive little mother - with her and I combined, cancer will have no hope! Bring it! (,,,,yes sadly I have also been watching too much of the bloody X factor. I mostly sit there and go on about how (last year) that nut job kept getting thru (to my disgust) and finally won! Where is he now I ask you? I'm surprised X factor has any cred at all ,,,, but I'm still addicted this year! )
Friday, September 9, 2011
every day is ground hog day
These days my energy gets spent on the children/family and resting. Sorry if I haven't been returning calls, I run out of chat-power quickly, however thanks so much for thinking of me/us and ringing! I'll get back to you eventually.
Saw Dr Will yesterday and apparently my bloods are back to normal which indicates I am totally engrafted. That simply means its my sisters blood now running around my veins. Just waiting now to see what happens next regarding "graft vs host" disease. Have had some miscellaneous pain and did a CT scan which shows nothing, feeling better today so we will see.
Saw Dr Will yesterday and apparently my bloods are back to normal which indicates I am totally engrafted. That simply means its my sisters blood now running around my veins. Just waiting now to see what happens next regarding "graft vs host" disease. Have had some miscellaneous pain and did a CT scan which shows nothing, feeling better today so we will see.
Thursday, September 1, 2011
Glad to be home
Spending time with the family, and taking care to stay away from germs, loving the nana-naps.
Dr Will very happy with progress, I'll be doing some radiotherapy on the chest to keep the cancer there in check until my sister's immune system kicks in. That will happen in the next few weeks.
All in all, I'm feeling really good! Bring on spring.
Dr Will very happy with progress, I'll be doing some radiotherapy on the chest to keep the cancer there in check until my sister's immune system kicks in. That will happen in the next few weeks.
All in all, I'm feeling really good! Bring on spring.
Subscribe to:
Posts (Atom)